Tuesday, April 21, 2009
Frustration
I'm learning that the pain in my body is very cyclical. The good days are great but the bad days are terrible. I just really want to get to the bottom of this issue. I have been trying not to write about it because I just really don't want to have any memory of this and for it to be figured out but it is such a part of our lives right now. A friend gave us a packet on Fibromyagla and J read it last night. I know he is frustrated just like I am and this is my proof. I try really hard to cope but sometimes it is just too much for me to keep to myself and I go to him. The worst part of everything is that when we do research on the diagnosis they give us I really don't fit the bill but may have one or two symptoms. It's frustrating. One thing that we have learned is that fibromyagla comes out after a trama to your body ie my c-section. Even though it was a controlled trama it was a contributing factor. We'll see they are running a few more tests today and the doctor said to come in 3 weeks for the follow up to the tests. WHAT? 3 weeks. I'm not waiting that long. I think I will be good if I can wait a week. I'm asking the person doing the test to find out how long it takes to get the results and then I'll make my appointment. Why should I wait for no reason, just so I can worry about the results, that is so stupid. I'm done complaining now. As my hubby said hopefully God could use this to His glory somehow.
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12 comments:
Oh dear. Sorry that you're going through this. I keep hoping things get sorted/figured out SOON...this has been going on way to long...not good. I'll be praying for you.
Sorry, friend! Praying for patience with the kids. It can be hard dealing with them when you're in pain.
I will pray that things will get better for you soon. I am so sorry you have to endure this constant pain.
It has to be so frustrating not having straight answers. I hope that you will able to figure something out, and feel some sort of relief....and 3 weeks...they have got to be crazy. I don't think any person should have to wait that long to get answers.
So sorry to hear about the hard time you are having. Praying that you will find the answers soon and are able to get some relief!
I can totally empathize with you when our bodies are not doing what we want them to do! Glad you are getting more tests done and hope you will be able to get some answers soon!! Completely agree that 3 weeks is way too long! Praying for you!
I'm new to this blogger stuff. Just stumbled on your blog somehow...usually at work, home with sick child. I had a neighbor with FM...it took them forever to diagnose. Once they did, she got help. Patience is needed as well as being open minded. Sometimes knowing the name of the "creature" you're fighting can give you more strength.
G
My sister's fibromyalgia (sp??) always flairs when she is stressed. Which is crazy because you are stressed because of being sick, and then it is just a vicious cycle. Ugh!
Hang in there! Praying you feel better soon!
I'm so sorry Tonya. I wish there were something we could do for you!
((((HUGS)))) Tonya, I'll keep you in my prayers. Hopefully you will have the results sooner then three weeks.
So sorry... It is very frustrating when your body isn't working quite right. I told my hubby the other night, "My "tent" is wearing out already!!!" Hang in there, hope you are feeling well.
Oh... so much to say about many of things you've talked about here. I've been wondering how you've been doing. I'm sorry you feel like you can't talk about it, but I understand feeling that way too. I tend to kind of "stuff it" myself when I'm having a hard time.
With my mother having MS... I've learned a little bit about these auto-immune disorders, and the one thing I've noticed is that there are no set list of symptoms that determine what you have. It's really frustrating.
I'm keeping you in my prayers! Much love and hugs to you!
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